Treatment & Research News November 29, 2006
OUR MISSION "To empower patients to take control of their health by providing comprehensive health resources, current treatment information, quality health products and advocating for patient rights." more $2.5 Million Donated to Research
Highlights of the Week Dr. David Bell on IV Fluid as a Treatment for CFS The Marshall Protocol - hopeful results emerging Consumer Reports on sleep drug marketing, risks D-ribose reduced CFS/FM symptoms & other abstracts "Wacky Doc Sayings" and more letters from readers Conference to feature unifying theories of CFS & FM A story of "amazing recovery" on Marshall Protocol Weekly Inspiration & more
THIS WEEK'S SPECIAL NEW PRODUCTS FIBRONOL - Supports sleep FIBROBOOST - Supports sleep - Extra energy boost STEVIA EXTRACT - All-natural sweetener EZ DOSE PILL POUCHES - Zipper-sealed, durable FEELBRIGHTLIGHT - Full spectrum light for Seasonal Affective Disorder BOOKS - Research & information Informational DVD's The Joy of Nutrition An optimum nutrient food program I Remember Me An award-winning documentary film Fibromyalgia: Show Me Where It Hurts An invaluable educational tool This Week's Highest Rated BRAIN SUPPORT Neuro B-12 Ginkgo Biloba DETOX SUPPORT Ultimate Cleanse Guaifenesin FA DIGESTION SUPPORT Vital Enzymes Acidophilus Pearls ENERGY SUPPORT NADH Ultra ATP+ Mitochondria Ignite IMMUNE SUPPORT Olive Leaf Extract ProBoost Thymic Transfer Factor Essentials MOOD SUPPORT 5-HTP St. John's Wort SAM-e PAIN SUPPORT O24 Fibromyalgia Fibro Complete Multi SLEEP SUPPORT L-Theanine Calm-Plex Melatonin - Sublingual Most Popular for Detoxification Guaifenesin FA Most Popular for Energy Support Enada NADH	Founder's Corner CFS Name Change Advisory Committee Grows This week we welcome Dr. Nancy Klimas, MD, to the CFS Name Change Advisory Committee. Dr. Klimas, who has dedicated much of her career to solving the mystery of Chronic Fatigue Syndrome, heads up a center for CFS studies at the University of Miami School of Medicine. As one of the world's leading authorities on CFS, she is also president of the International Association for CFS (IACFS), and co-editor of the Journal of Chronic Fatigue Syndrome. Dr. Klimas joins a team of other widely published, quoted, and respected CFS experts in the U.S. - Dr. Daniel Peterson, Dr. David Bell, Dr. Leonard Jason, Dr. Charles Lapp, and Dr. Lucinda Bateman. It is clear that the present name is trivializing, demeaning, hurtful, and possibly discriminatory. Who could argue that the label Chronic FATIGUE Syndrome does not conjure up images of someone who needs more sleep? And when you consider the CDC's report that 25 percent of patients with CFS are disabled, it's clear we're talking about a very serious and devasting disease. We'll soon be at the point where patients can discuss the name suggested by the Name Change Advisory Committee. If we embrace it we'll start organizing and mobilizing. We control our own destiny and it's up to us to right this injustice. Sincerely, Rich Carson ProHealth Founder and CFS Patient PS: To the hundreds of people who have written to volunteer their time and talents for this work so far, we'll be in touch. Stay tuned, take good care of yourself, and keep the faith. Advice From the Experts Dr. David Bell on "Intravenous Fluid as a Treatment for ME/CFS" This "is the most effective treatment for severe ME/CFS that I have found in my 21 years of looking," says Dr. Bell. "But it has serious drawbacks and risks."   more The Marshall Protocol for FM and CFS - Hopeful Results Emerging Many patients with CFS, FM, lupus, RA, Lyme disease, and other chronic "Th1" conditions are reporting life-changing improvements with a new - albeit controversial - experimental protocol developed by Trevor Marshall, PhD. Possible ability to benefit is gauged by two blood tests.*   more Pharmaceutical Drug News Consumer Reports Criticizes Sleeping Pill Advertising, Warns of Risks Encouraged by heavy, artful, advertising of prescription sleep drugs, consumers may be assuming unnecessary risk because they're ill informed about proper use of these "sedative/hypnotics" and safe alternatives.   more Clinical Trial Update Major Late-Round Ampligen® Trial Recruits in Seven States Leading CFS doctors Daniel Peterson, Lucinda Bateman, and Charles W. Lapp are principal investigators in this study of the antiviral drug Ampligen® for treatment of severely debilitated CFS patients.   more CFS Research Abstracts D-ribose significantly reduced clinical symptoms in CFS & FM pilot study Central sensitization: Biopsychosocial explanation for chronic widespread pain in FM and CFS Urinary Cortisol and Cortisol Metabolite Excretion in CFS Sleep characteristics of persons with CFS and non-fatigued controls CFS patients report above-normal physical activity prior to illness Drug residue effects on neuroendocrine balance & behavior - Hubbard sauna regimen to remove toxins, restore health New method for detecting gene-gene interactions, quantifying disease risk Letters From Our Readers Kudos and Comments New catalog format a hit Keep up the international perspective I understand my illness Nutrition really is important Dr. Cheney's treatment helps Wacky Doc Sayings "It will probably go away," and other diagnoses Write us a letter CFS in the News National Conference to Feature "Unifying Theories" of CFS and of FM What is all the new research telling us about CFS and FM - and how they might be related? On May 4-5, 2007, a high-profile cast of top U.S. CFS and FM researchers will convene in Salt Lake City to explain their "Advances in Understanding and Treating CFS and FM." Here's the program so far.   more Patient Perspectives One Woman's "Amazing Recovery" on the Marshall Protocol After 20 years of chronic illness with many diagnoses, a Texas woman discovered she had Lyme disease. Then followed six years of fruitless antibiotic therapy. Finally she embarked on the Marshall Protocol.   more The "Invisible Elephant": What Our Friends Might Like to Know From the journal of Karen Dickson, a CFS/ME patient in the UK.   more Weekly Inspiration "Antidotes are what you take to prevent dotes." - Anonymous The Beautiful Simplicity of Kindness For those of us who missed World Kindness Week this year, the Random Acts of Kindness Foundation ( www.actsofkindness.org ) offers kindness-inspiring ideas, materials, and guides completely free to all - individuals, groups, teachers, students. To quote a few who are already "with the program": Do your little bit of good where you are. It's those little bits of good put together that overwhelm the world. - Desmond Tutu Wherever there's a human being, there's an opportunity for kindness. You don't have to plan some big event. You can be strolling the hall in school and say "hi" to a stranger. Simplicity is the way, you know? - a student My religion is simple. It is kindness. - Dalai Lama About ImmuneSupport.com Published by ProHealth, Inc., ImmuneSupport.com is the Web's largest resource for Fibromyalgia and Chronic Fatigue Syndrome. Since 1988, ProHealth has raised and donated over 2.5 million dollars to CFS and FM research and advocacy groups seeking a cure. We believe in "commerce with compassion." Every purchase made at ImmuneSupport.com funds research - as does every purchase made from ProHealth's Health Resource catalog. Visit ImmuneSupport.com If you have any comments, suggestions or ideas, please let us know. 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* Note: This article first appeared in last week's FM Edition of CFS & FM Treatment & Research News (Nov 22, 2006)